You know the old saying, “time flies when you’re having fun,” well it’s totally true! I’m way overdue writing an update on Andy, but decided I would just push it off until his next appointment, which was this past Tuesday.
Celebrating two years cancer-free at Burgerville!
All is going very well and I think it really helps that it’s been rather sunny in the Pacific Northwest, which is always a mood booster after such a rainy winter. Andy has been staying well, praise God, and so we’ve just been enjoying normal everyday activity.
All the boys ready to go swimming with their cousins.
We’ve been doing a lot of celebrating lately. It’s the beginning of the “birthday season” at our house. Andy’s two brothers both had birthdays within a few weeks of each other. We also had an enjoyable time celebrating Easter and Mother’s Day with our extended family. There was a quick jaunt up north for Cousin Alex’s birthday party a few weeks ago. But by far, the best celebration to me was celebrating two years cancer-free for Andy on April 13! Since the day we found out he was cancer-free was the day our friends hosted a fundraiser at Burgerville, we’ve found it fitting to revisit Burgerville the past two years on the anniversary. I guess it’s a new family tradition.
Thanks to the CCA (Children’s Cancer Association), we also got to go see the play The Giver in Portland and attend an art class put on by Vine Gogh a few weeks ago. We also visited the Portland Aquarium using the tickets Andy won last year at the National Cancer Survivor’s Day celebration. Then to top it off, we even snuck in our first “beach day” yesterday after school. It was only down to the local river, but the weather was amazing and a perfect day to play in the sand.
Downtown Portland at the theatre were we watched *The Giver* play.
Andy has had two appointments since I last updated. The first was on Tuesday, April 15, and it was more of a pit stop appointment since he only received IV chemo. At that appointment his labs looked great, tho one of his liver enzymes was riding a bit high again. Thankfully it is no where near what it was back at the beginning of the year. He weighed in at 78 lbs and had an ANC of 1420. Overall, a really great appointment. His medications stayed the same for the month (9.5 Methotrexate tabs per week, 15 6MP tabs per week, 6 Septra tabs per week, and 46 mg of Prednisone per day for 5 days).
Art class – nice apron dad!
The appointment he had this week was on Tuesday, May 13, and was a longer one because he had to be sedated for a back poke of Methotrexate plus he got his regular Vincristine via IV. The sedation and back poke went well, which is always something both Chuck and I get a little uneasy about. I know the doctors are competent and they do this every day, but as parents, having your child sedated never is easy. I was so excited thinking he only had four back pokes left after this appointment, but yesterday when I was looking at the calendar, I realized I miscounted and he still has five left. At his appointment, he weighed in at 79.5 lbs, had an ANC of 1180, and labs looked great except that one liver enzyme is still a bit high. His provider said it’s barely high in their eyes so no worries. Because of a small weight and height increase, his medication dosing went up. He’s now taking 9.5 Methotrexate tabs per week, 15.5 6MP tabs per week, 6 Septra tabs per week, and 48 mg of Prednisone per day for 5 days.
At the Portland Aquarium
Unfortunately, today the monthly steroid mess is here. This poor boy is such a disaster each month. I just dread going to the hospital because I know he’s going to be an emotional wreck for nearly a week. But as my mama always told me, “and this too shall pass.” I know it will, but sobbing over having to fill in a multiplication table for part of your math worksheet is just the pits for everyone all around.
Fun in the sun – first day at the beach in 2014!
Thank you for continuing to pray for Andy. He’s doing so well and it just fills my heart with so much joy. We continue to praise the Lord each day for his mercy and goodness toward our family and especially Andy.
“Give thanks to the Lord, for he is good! His faithful love endures forever.” ~ Psalm 136:1